- Alpha 1 Association
- Cancer Family Care
- Case Management Resource Guide
- Children’s Organ Transplant Association
- Consumer MedHelp
- Health Facility Institute
- Hospital Hospitality Houses
- International RRP ISA Center
- MedExplorer Health/Medical Internet Search Engine
- Mesothelioma Web
- National Institutes of Health – Office of Rare Diseases
- National Organization of Rare Disorders (NORD)
- Thyroid Cancer Survivor’s Association